Day 2 :
- Nursing Primary Care
Session Introduction
Dilshad Begum
Aga Khan University, Pakistan
Title: Exploring the research participants’ perceptions and experiences of the informed consent process in clinical trials and observational studies at Karachi Pakistan
Biography:
Dilshad Begum is the Assistant Manager in clinical Trials Unit and she has more than seven years of experience in clinical trials management. She has managed several international multicenter clinical trials as study coordinator and also facilitates trainings on ICH-GCP, protocol writing and budget development. She is also member of The Association of Clinical Research Professionals (ACRP).
Abstract:
Ethical and legal dogmas mandated obtaining informed consent from the research participants and their legal representatives before enrolling them in any clinical research. Regulatory guidelines emphasize that research participants should have adequate information and understanding about the research and informed consent should be an ongoing process rather than an event. There is a debate that the quality of informed consent is poor in developing countries, as compared to the developed ones. The purpose of this study was to explore the research participants’ perceptions on the informed consent process in clinical trials and observational studies. The study also intended to assess the participants’ understanding on basic elements of informed consent, i.e. purpose, risks and benefits, voluntary participation, alternative treatment or procedures, confidentiality, indemnity or compensation for harm or injury and whom to contact in case of injury. Data was categorized into themes, categories and subcategories. Five major themes emerged from the results of the study, which includes: (1) Information disclosure, (2) comprehension or understanding and (3) voluntariness, (4) competence, (5) and decision making. The results showed that information about research studies was partially disclosed. Research participants with higher level of education have better understanding of the informed consent as compared to those who have less education. All participants shared that they have voluntary participated in the studies and most of them showed altruism as motivating factor for participation. Research participants preferred to discuss informed consent with family and then take a shared decision with the research investigators after getting all the information. Research investigators need to give proper training to the research team on research consent administration and monitor the process frequently. National and institutional regulatory bodies need to be Stringent in protocol reviews and should have infrastructure for monitoring and audits, monitor the compliance and take appropriate action on noncompliance.
Sarah Cope
University of Canberra, Australia
Title: The performance of caring: The construction of nursing care for people with dementia who live in residential facilities and wander: An interpretive study
Biography:
Sarah Cope has received her Doctoral degree in 2016 from Queensland University of Technology, Dementia Collaborative Research Centre: Carers and Consumers (DCRC:CC). Australia. She is a Senior Lecturer at the University of Canberra where she enjoys the enthusiasm and sprite from students for the nursing profession. She holds special interest in dementia care, residential aged care gerontology, symbolic interactionism and researching spatial and temporal realties socially negotiated nursing practice. In her work she has provided expert clinical advice on specific care to support people living with dementia, to carers and health care providers. She is a Registered Nurse and holds a Bachelor of Nursing and a Master of Nursing (Dementia Care).
Abstract:
Specialized dementia care within the residential aged care sector has undergone significant change over the last few decades. One important shift is in the way that aged care providers market their services in offering specialized care including dementia care. The aim of this research was to gain insight into the perceptions and practices around the direct care giving experiences of care staff that provide care in RACFs to people with dementia who wander. This research adopted a social interpretive framework informed by symbolic interactionism and dramaturgy. Data were generated from eleven focus groups conducted with 48 nursing staff at four NSW/Sydney metropolitan RACFs. Data were analyzed using a symbolic inter-actionist lens and open and focused fracturing of data methods of Charmaz (2011). The key finding was that a social order of practice was constructed in the RACFs through participant interpretations of spatial and temporal frames within the RACF setting. The participants used space and time to organize and mediate the ways in which they worked with people with dementia who wander. The construction of care was also positioned within the social order of the organization and the broader regulatory environment. Thus there existed a tension between the organization of care work in the RACF and the person-centered care approach as advocated by the residential care industry and the nursing profession. The research found that the construction of nursing care within a RACF environment is predominantly framed by efficiency measures that privilege linear clock time and habitual practice over the flexibility required for a person-centered approach to caring for people with dementia who wander.
- Nursing Education & Management
Session Introduction
Rodolfo C Borromeo
San Juan de Dios Educational Foundation, Philippines
Title: Reflective and interactive coaching huddles in building engaging workplace
Biography:
Rodolfo C Borromeo has completed his Doctoral degree major in Educational Management at the Philippine Women’s University, Philippines. He is currently the Director of Nursing Service Division of San Juan de Dios Educational Foundation, Inc. Hospital since 2005. He is also the Vice President of the Association of Nursing Service Administrators of the Philippines (ANSAP) and is a Member of the Ethics Committee and Chairman of the Research Committee of the same organization.
Abstract:
One of the values of the hospital that relates to work engagement is co-responsibility, which was found to be a challenging behavior. Nevertheless, it devotes its context towards developing individual’s capability to engage in the organizational activities. The study determined the impact of the Reflective and Interactive Coaching Huddle (RICH) in building workplace engagement among nursing service employees of San Juan de Dios Educational Foundation Inc. Hospital. The purpose of this study was to determine the significant variations on the achievement work engagement metrics of the nurses under study after the implementation of the said coaching guidelines. This study employed a descriptive, evaluative research design, of which 183 staff nurses, charge nurses and nurse managers have participated. Findings reveal that the participants were predominantly female, aged 21 to 25 years old. The extent of workplace engagement was evidently observed by nurses and rated from high to very high extent of achievement. There were significant variations on the extent of achievement to workplace engagement based on positions, age and interdisciplinary communication. It was then recommended to continue the use of the reflective and interactive coaching huddle to among nurses, blended understanding of both staff nurses and nurse managers, decreasing generational gaps through training modules capitalizing on reflecting generational limitations and devising a recognition criterion to acknowledge the most engaged team among nursing units and positions.
- Midwifery & Women health Nursing
Session Introduction
Hasnain Sabih Nayak
School of Public Health, Independent University, Bangladesh (IUB), Bangladesh
Title: Midwifery Education, Profession and Practices in Cox's Bazar
Biography:
Hasnain Sabih Nayak, a Bachelor in Architecture and Master of Public Health, has been involved in Early Childhood, Infrastructure, Institutional, Projects/Programs, Advocacy & Communication/ Promotional & Social Marketing/ IEC & BCC Programs/Materials/Strategies Development in the health sector for 25 years. He is an independent consultant; Adjunct Faculty, School of Public Health, Independent University, Bangladesh; Trustee, Mental Health Awareness Training Education Research & Services Trust; President, Social Assistance and Rehabilitation for the Physically Vulnerable; Country Representative, Healthcare Information For All; Co-founder and Int’l Relations & Culture Editor of TOITOMBOOR (leading children & juvenile monthly of Bangladesh); and an active Rotarian.
Abstract:
Bangladesh has made a great progress in reducing infant and maternal mortality rates as part of the MDGs. Yet every year there are significant numbers of maternal and neonatal deaths. Thus, introduction of midwifery services seemed imperative. A 3-year midwifery diploma was started by Government of Bangladesh, supported by WHO and UNFPA in public/govt sector and by BRAC University (BRACU) with UKAid funding from UK Government in non-govt sector. In Cox’s Bazar more than 90% women give birth at home, less than half of them attended by skilled healthcare workers. As one of the seven partner sites of BRACU in the ‘Community-based Midwifery Diploma Program’, HOPE Foundation for Women and Children of Bangladesh, based in Cox’s Bazar, started training Bangladesh’s first class of 30 midwives in 2013. All the students selected for this program are local to Cox’s Bazar, with the intent that these girls will remain local upon graduation to meet the high needs of maternal care in the remote areas. Despite some challenges, 29 graduated from the first cohort and obtained professional certificates to be able to practice individually on their own. Institutional Job opportunities work as pull factors for migration of the midwives to the bigger cities. However, forced displacement of Rohingya population to Cox’s Bazar from Myanmar, with a huge number of pregnant women, resulting in a higher need/demand for the midwives, acts as a counter pull-factor for repatriation or re-migration for the midwives to get back to Cox’s Bazar.